Multiple Sclerosis

[aikido]

Thanks. Very interesting article. Hopefully the trials prove successful whenev we they get apporval.

 

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[Section_31]

Good to see you back on here Aikido, not seen you post for a while.

[Anny Road]

Keep your chin up mate.

I know we on here are noones to you but I always value your balanced opinion.

You are a topper in this shit hole of a community.

 

Like a floating shit when all other opinions are flushed with one pull.

[Captain Turdseye]

I've been invited to take part in a drug trial with Cambridge University/Addenbrookes Hospital. It's this drug previously used for Cancer...

 

https://en.m.wikipedia.org/wiki/Bexarotene

 

They think it could encourage the myelin damage in the brain caused by MS to repair itself. I've just had an email exchange with them and they're gonna bring me in for a consultation. On the one hand, I'm prepared to give it a go for the good of all mankind, potentially improving the lives of millions of people now and in the future. But on the other hand they're suggesting that for the length of the trial I have no more than 14 units of alcohol per week. I would also have to eat less bacon.

 

It's a tough call to make. I really, really like beer and bacon.

[VladimirIlyich]

I've been invited to take part in a drug trial with Cambridge University/Addenbrookes Hospital. It's this drug previously used for Cancer...

 

https://en.m.wikipedia.org/wiki/Bexarotene

 

They think it could encourage the myelin damage in the brain caused by MS to repair itself. I've just had an email exchange with them and they're gonna bring me in for a consultation. On the one hand, I'm prepare to give it a go for the good of all mankind, potentially improving the lives of millions of people now and in the future. But on the other hand they're suggesting that for the length of the trial I have no more than 14 units of alcohol per week. I would also have to eat less bacon.

 

It's a tough call to make. I really, really like beer and bacon.

Its a no brainer(see what I did there?) only deviants give up bacon! Seriously though,this sounds encouraging and giving up booze, or cutting down isn't as tough as you think. Good luck and go for it.

[Champ]

I've been invited to take part in a drug trial with Cambridge University/Addenbrookes Hospital. It's this drug previously used for Cancer...https://en.m.wikipedia.org/wiki/Bexarotene

They think it could encourage the myelin damage in the brain caused by MS to repair itself. I've just had an email exchange with them and they're gonna bring me in for a consultation. On the one hand, I'm prepared to give it a go for the good of all mankind, potentially improving the lives of millions of people now and in the future. But on the other hand they're suggesting that for the length of the trial I have no more than 14 units of alcohol per week. I would also have to eat less bacon.

It's a tough call to make. I really, really like beer and bacon.

Do it, John. You know it makes sense x

[Lee909]

Sounds great

Hope it all works out well for you mate

[Captain Turdseye]

Do it, John. You know it makes sense x

As soon as Mel saw the letter I don't think I had much choice in the matter.

 

Sounds great

Hope it all works out well for you mate

I think you misread my post, Lee. It says LESS beer and bacon.

[TheBitch]

Just double down at the end of the trial.

[Lee909]

As soon as Mel saw the letter I don't think I had much choice in the matter.

 

 

I think you misread my post, Lee. It says LESS beer and bacon.

 

 

As the Bitch has said just get double the amount later to catch up.

 

There's always veggie bacon and turkey bacon(he types trying not to piss himself with laughter)

[Russ Atmosphere]

Zammo was wrong. Just say YES.

[aikido]

I've been invited to take part in a drug trial with Cambridge University/Addenbrookes Hospital. It's this drug previously used for Cancer...

 

https://en.m.wikipedia.org/wiki/Bexarotene

 

They think it could encourage the myelin damage in the brain caused by MS to repair itself. I've just had an email exchange with them and they're gonna bring me in for a consultation. On the one hand, I'm prepared to give it a go for the good of all mankind, potentially improving the lives of millions of people now and in the future. But on the other hand they're suggesting that for the length of the trial I have no more than 14 units of alcohol per week. I would also have to eat less bacon.

 

It's a tough call to make. I really, really like beer and bacon.

Fair play if you decide to take part in the trials. I've always been weary about the side effects of a trial, but I'm sure it's pretty relative to the variety of M.S. meds people take nowadays.

 

I'm on a new drug called Tecfidera, one of the oral pill medications. Got tired of the injections and was glad to see an oral medication on the market. Usual shite with these meds, they're not sure exactly how they work, but meant to reduce the amount of relapses and size of lesions.

 

I've been very lucky so far, only had one relapse since my diagnosis, the initial optic neuritis. On the flip side, I've had new lesions develop every year when I get my MRI results. At present, I've lesions on every vertebrae in my thoracic and cervical spine, as well as a fuck off amount on my brain.

 

I don't drink, don't smoke, been vegan for three years now. Doesn't seem to make a difference to lesion development.

 

I do see an ace neurologist though. Russian guy recommended from the National MS Society, resides here in New Jersey. No sugar coating anything with this guy. Had my last appointment a couple of months and basically he said they're still no closer to a cure because they're no closer to knowing what causes the disease. Some meds better than others, but each patient responds differently so what's good for the goose is good isn't always for the gander.

One thing he did say was don't get involved in anything to do with stem cell therapy.

 

Things will be a whole lot different I tell you, if we win the league.

 

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[Captain Turdseye]

Fair play if you decide to take part in the trials. I've always been weary about the side effects of a trial, but I'm sure it's pretty relative to the variety of M.S. meds people take nowadays.

 

I'm on a new drug called Tecfidera, one of the oral pill medications. Got tired of the injections and was glad to see an oral medication on the market. Usual shite with these meds, they're not sure exactly how they work, but meant to reduce the amount of relapses and size of lesions.

 

I've been very lucky so far, only had one relapse since my diagnosis, the initial optic neuritis. On the flip side, I've had new lesions develop every year when I get my MRI results. At present, I've lesions on every vertebrae in my thoracic and cervical spine, as well as a fuck off amount on my brain.

 

I don't drink, don't smoke, been vegan for three years now. Doesn't seem to make a difference to lesion development.

 

I do see an ace neurologist though. Russian guy recommended from the National MS Society, resides here in New Jersey. No sugar coating anything with this guy. Had my last appointment a couple of months and basically he said they're still no closer to a cure because they're no closer to knowing what causes the disease. Some meds better than others, but each patient responds differently so what's good for the goose is good isn't always for the gander.

One thing he did say was don't get involved in anything to do with stem cell therapy.

 

Things will be a whole lot different I tell you, if we win the league.

 

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Yeah, that's what I was thinking about all day yesterday. I'll definitely go to the consultation but before I commit to it the first and most important question I'll be asking about is the potential side effects.

 

I've been on the Tecfidera right from the start. There was 18 months between my first two relapses and I got the diagnosis after the second one. It's just over two years since then so I guess you could say it's working. The initial couple of months on them was hell though! Stomach cramp, flushing and rampant diarrhoea. My arse still hasn't fully recovered. All I get these days is the occasional flush, usually after getting out of the shower.

 

You said there about your new lesions, another benefit to the trial if I do take part will be finding out about my own. Over here you aren't offered an MRI until you relapse and I'd assume there'll be a few scans during the trial. I'd be interested to see how far mine has gone.

[Rotpeter]

Yeah, that's what I was thinking about all day yesterday. I'll definitely go to the consultation but before I commit to it the first and most important question I'll be asking about is the potential side effects.

 

I've been on the Tecfidera right from the start. There was 18 months between my first two relapses and I got the diagnosis after the second one. It's just over two years since then so I guess you could say it's working. The initial couple of months on them was hell though! Stomach cramp, flushing and rampant diarrhoea. My arse still hasn't fully recovered. All I get these days is the occasional flush, usually after getting out of the shower.

 

You said there about your new lesions, another benefit to the trial if I do take part will be finding out about my own. Over here you aren't offered an MRI until you relapse and I'd assume there'll be a few scans during the trial. I'd be interested to see how far mine has gone.

 

My MRIs were billed at $5K a pop and ct scans $1k, no wonder they are rationed over there.

[aikido]

My MRIs were billed at $5K a pop and ct scans $1k, no wonder they are rationed over there.

Luckily with my insurance my MRI only cost me $500 out of pocket, which is not so bad considering I get 6 a year, neck, back and spine with and without contrast.

 

I'm not getting them done this year (annually done in November) because the specialist I see told me not to bother with them. He said it's better to measure disease progression in relapses and symptoms, not to worry about new lesions.

 

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[aikido]

Yeah, that's what I was thinking about all day yesterday. I'll definitely go to the consultation but before I commit to it the first and most important question I'll be asking about is the potential side effects.

 

I've been on the Tecfidera right from the start. There was 18 months between my first two relapses and I got the diagnosis after the second one. It's just over two years since then so I guess you could say it's working. The initial couple of months on them was hell though! Stomach cramp, flushing and rampant diarrhoea. My arse still hasn't fully recovered. All I get these days is the occasional flush, usually after getting out of the shower.

 

You said there about your new lesions, another benefit to the trial if I do take part will be finding out about my own. Over here you aren't offered an MRI until you relapse and I'd assume there'll be a few scans during the trial. I'd be interested to see how far mine has gone.

I still get mad flushing with tecfidera. Sometimes straight away, sometimes almost 2 hours after taking them. Pain in the hole when you're at work like a beetroot.

 

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[Rotpeter]

Luckily with my insurance my MRI only cost me $500 out of pocket, which is not so bad considering I get 6 a year, neck, back and spine with and without contrast.

 

I'm not getting them done this year (annually done in November) because the specialist I see told me not to bother with them. He said it's better to measure disease progression in relapses and symptoms, not to worry about new lesions.

 

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Luckily that bill was my copy of what they were going to bill someone else!  Which is lucky because they were multiples of each.

[Captain Turdseye]

I had an ace appointment with my neurologist last week. Top, top fella. I’m not here to talk about that though. 
 

Turdseye Jr is running a 10k race in Oxford in May and he’s decided that I’m his charity case. Well, not me, the MS Society, you know what I mean. 
 

One or two donations from here could give him a little head start…
 

https://www.justgiving.com/page/callum-turnbull-1709588045309?utm_medium=fundraising&utm_content=page%2Fcallum-turnbull-1709588045309&utm_source=copyLink&utm_campaign=pfp-share

All the usual pleases and thank yous obviously apply. I’ll rep you for a fiver, can’t say fairer than that. 

[Harry's Lad]

37 minutes ago, Captain Turdseye said:

I had an ace appointment with my neurologist last week. Top, top fella. I’m not here to talk about that though. 
 

Turdseye Jr is running a 10k race in Oxford in May and he’s decided that I’m his charity case. Well, not me, the MS Society, you know what I mean. 
 

One or two donations from here could give him a little head start…
 

https://www.justgiving.com/page/callum-turnbull-1709588045309?utm_medium=fundraising&utm_content=page%2Fcallum-turnbull-1709588045309&utm_source=copyLink&utm_campaign=pfp-share

All the usual pleases and thank yous obviously apply. I’ll rep you for a fiver, can’t say fairer than that. 

Donation sent.

And good on Young Turdseye.

[Lee909]

Sort you out when I paid in a few days

[Captain Turdseye]

Just now, Harry's Lad said:

Donation sent.

And good on Young Turdseye.

Nice one mate. 
 

And a fucking big thank you to Yorkshire Red as well. I’m never gonna mention the blog ever again. 

[Captain Turdseye]

Fuck it, who am I trying to kid. That blog was a disgrace. 

[3 Stacks]

43 minutes ago, Captain Turdseye said:

I had an ace appointment with my neurologist last week. Top, top fella. I’m not here to talk about that though. 
 

Turdseye Jr is running a 10k race in Oxford in May and he’s decided that I’m his charity case. Well, not me, the MS Society, you know what I mean. 
 

One or two donations from here could give him a little head start…
 

https://www.justgiving.com/page/callum-turnbull-1709588045309?utm_medium=fundraising&utm_content=page%2Fcallum-turnbull-1709588045309&utm_source=copyLink&utm_campaign=pfp-share

All the usual pleases and thank yous obviously apply. I’ll rep you for a fiver, can’t say fairer than that. 

Sent a few buckarooskis. In the weak Canadian dollar, but still. Big up to Turdseye Jr.

[Elite]

Done. I'll take a neg instead of a rep though. Ta.

[skend04]

Done. He better finish the 10k or else!