I've got 2 kids, one is under alder hey for a genetic condition.
Parents are thick and emotional. I know I am. But that's why sometimes the decision needs to be taken out their hands. They're not acting in the best interests of the child, they're acting in whay they believe the best interests of the child.
And they don't know he doesn't feel pain. He could. He could be in constant agony for all we know. Problem is, he wouldn't be able to tell us.
Seizure and aspiration is a lot worse way to go than organ shutdown.